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When you use this card to fill a prescription, National Hemophilia Foundation receives resources that go directly to support the inheritable blood disorders community.

Our Organization

The National Hemophilia Foundation (NHF) is dedicated to finding cures for inheritable blood disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy enabling people and families to thrive.

We are the largest nonprofit health care organization dedicated to inheritable blood disorders. Affected individuals and their family members are at the center of NHF’s work. We support research that has a measurable impact on people’s lives; deliver education that helps people with blood disorders and their family members thrive; and advocate for policies at the state and local level that protects access to healthcare. Learn more at or by following NHF on social media by searching for the @nhf_hemophilia on your favorite platform.

What We Do

Research – NHF is currently developing a national research agenda in partnership with the inheritable blood disorders community, including patients and families, healthcare providers, our local chapters and other inheritable blood disorders advocacy groups, and pharmaceutical companies which is our State of the Science Research Summit. This ensures that the voice of the people who are most affected by research – the patients and families – remain at the center of scientific progress.


Education – NHF believes in giving people with inheritable blood disorders the tools they need to manage their disorder, make informed decisions around their care, and live healthy, productive lives. We created vetted, unbiased educational content on a variety of topics – from gene therapy to mental health – to help affected individuals and their family members thrive. Our educational content is available through webinars, chapter events, and at NHF’s Bleeding Disorders Conference.


Protect Access to Healthcare – NHF is committed to ensuring that people with inheritable blood disorders have timely access to quality medical care, therapies and services, regardless of financial circumstances or where they live. In our history, we have advocated for patient protections including equal access to health insurance for people with pre-existing conditions, the elimination of lifetime and annual caps, and access to FDA-approved therapies.


On the state level, we work with our chapters to train advocates, identify issues regarding access to care, and train state-based advocacy coalitions (SBACs) to work together to advocate with state legislatures.

Local Connections- NHF supports a network of 50 local organizations. These chapters, provide a variety of education and services to people with inherited blood disorders. To find your local chapter, click here